Monday, April 12, 2010

Omphalocele

I debated on whether to post this or not because it's personal for Coralie. I decided to go ahead because when we first had her file I couldn't find much on any of my waiting children adoption boards about her special need. It was a bit overwhelming and I was starting to feel like maybe this wasn't something we could handle. Finally I did a search on Rumor Queen and found one poster asking if anyone had adopted a child with this special need. I contacted her and she was so nice and shared so much about what she had learned about Omphaloceles since she had been matched with her daughter (at the time they hadn't traveled, but they are now home with their gorgeous little girl). I felt such a peace after talking with her and I want to be as open so that if someone else is presented with a child with an Omphalocele, maybe Coralie and I can be an encouragement for them.

This is Coralie's Tummy

*pic removed*

We don't have any pictures of her as an infant but you can click below to see a picture of what an Omphalocele looks like at birth. WARNING: it is graphic so view at your own risk.

Omphalocele at birth

What is omphalocele?


Omphalocele (um-fal-o-seel) occurs when some of the internal organs normally located in the abdomen of a baby are pushed out into the base of the umbilical cord. The abdominal cavity itself may be small and underdeveloped because the organs normally contained in it developed outside of it. The organs pushed out into the umbilical cord may be covered by a membranous sac, or the sac may be ruptured before, during or after delivery. Omphaloceles vary in size from very small to "giant". Small omphalocele's occur in 1 out of every 5,000 to 6,000 births. Large or "giant" omphaloceles occur in 1 out of every 10,000 live births. A small omphalocele involves only a small portion of the intestine outside the body. A giant omphalocele is very large and may have other organs such as liver, spleen and intestines herniated into the umbilical cord. Giant omphaloceles may have a more guarded prognosis.

Up to 50 percent of babies with an omphalocele will have an associated anomaly or birth defect including: cardiac (most commonly seen, found in 19 to 32 percent of cases), neurological, skeletal, chromosomal, urinary tract, or Beckwith-Weidemann syndrome. Omphaloceles associated with other anomalies may also have a more guarded prognosis. Omphaloceles are seen more commonly in mothers over age 35. We do not know the cause of an omphalocele. We do know that during fetal development the intestines will move outside the body for a time and then move back in. For some reason there is a failure or a disruption during this period of development and the intestines fail to migrate back into the abdominal cavity. We know that omphaloceles are not caused by anything the mother ate or did during pregnancy.

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Because the medical information from China is so vague and because some things just don't translate well in the medical files, we really don't know much about Coralie's omphalocele. What we do know is that she is able to eat and defecate normally which are very good signs. What we also know is that we have peace about this adoption and that can only come from God. With Him we can handle whatever comes our way.

2 comments:

The Byrd's Nest said...

Maybe posting this on your blog will bring you even more adoptive parents who have adopted a child with a similar special need and then you can have even more information. All I know is that she will get the medical help she needs but even more than that.........she will have the BEST family ever:) I am so happy for you....you are an inspiration!

Shelby L. Fisher said...

I love what you're doing.
Adoption is a great thing and I wish more people would do it.
I'm 18 and want kids. (NOT NOW SOMEDAY)
I appreciate that a child with a physical medical need is being taken in by you.
I hope that more people that have a stable financial situation will start adopting and helping children with physical medical problems. ( and adoption in general)
I've suffered depression among other mental illnesses and was basically abandoned by my parents.
I also hope people will adopt the mentally ill and try to help them.

It's such an amazing and incredible thing.
Thankyou for being on this earth!